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Well, in trying to make good on LAST years Christmas present to Sally (it was suppose to be a trip the the Grand Canyon, but I don’t think I am up for that yet), we have scheduled a trip to Disney, just the two of us.  We will depart on March 21 and return on the 26th.  We are staying at the Boardwalk Inn.  Thank you Betsy for setting us up in style.  We are not sure of our exact plans yet, but after all the crap (literally) that I have put Sally through, she deserves the best I can manage.  Any ideas on what NOT to miss?  I LOVE to eat, but now I have so many limitations on eating and I don’t want eating to interfere with our daily activities.

We had been once years ago with the kids and we of course planned the trip then around them.  Now it is around making Sally happy (and being done with chemo and cancer).

Just an update for the un-awares:  I have a test on Wednesday, which will determine my readiness for the ileostomy reversal which should happen early April.  My kidneys are acting up again.  I see my Kiney doctor on Tuesday.  I don’t know if I should be hoping it is the same thing as last time or not.  They drained 1.5ish liters of fluid from me last time.  If the fluid is back something will need to be done to find the cause before too long.  I can’t keep going in for surgery every two months, no matter how much I enjoy the camaraderie at the hospital.

Here is hoping I will be able to report an accident free Disney trip.  I can’t tell which is my worst fear, and accident or all the walking.  I still tire easily.

I have been given a new diagnosis, which both shocks and saddens me. I received this diagnosis from my wife. I suffer IBHS, or Irritating Butt Head Syndrome. When I inquired as to how long this condition has existed, she stated the underlying symptoms have been there for years, but only now have the symptoms become intolerable. On the up-side, it appears other people suffer the consequence of the disease and not me, I just bear the burden of the symptoms. Which as it turns out are easily managed with gentle reminders of my condition from my loving wife.

If you fear you too suffer this incurable, yet treatable disease, just ask your wife, but do yourself a favor, don’t ask for a second opinion. The line gets kind of long.

If you are female, do not fear that you have this dreaded disease, as apparently you are immune and any symptoms you might suffer are apparently sympathetic side effects of your husband’s IBHS. If your husband does in fact have IBHS, and only you can tell for sure, be gentle with him in both divulging the diagnosis and managing the symptoms.

A final note to sufferers of IBHS, send flowers often – it does not always help, but you need all the help you can get.

Live long and prosper!

(P.S. This post is Sally approved!)